If you or someone you love is newly diagnosed or living with a rare kidney disease, and you need more information, we encourage you to connect with the following organizations.
Take a moment to explore the support groups, tools, resources, and communities below.
Jeff’s Story
Jeff and his family, like others who have faced the diagnosis of a rare kidney disease (RKD), were surprised to learn that he had IgA nephropathy (IgAN). Over time and with the support of his community and care team, Jeff was empowered to take control of his health and advocate for more awareness of IgAN.
The 12-minute Medical Stories segment, airing via PBS stations, includes expert commentary from Jai Radhakrishnan, M.D., Columbia University Medical Center. Interviews with Jeff and his wife (and care partner) Joy give viewers an authentic, intimate look into their day-to-day lives, and how they are each impacted by Jeff’s RKD, while Dr. Radhakrishnan explains the disease and the urgency to protect kidney function in IgAN.
