More Than a Diagnosis

IgAN is a rare kidney disease that affects approximately 1 in 100,000 people each year, silently building deposits of immunoglobulin A in the kidneys that can gradually affect their ability to filter waste. For many, the journey begins unexpectedly; perhaps with tea-colored urine or persistent fatigue that signals something isn’t right. While each experience is uniquely personal, the questions and uncertainties often echo across our community: navigating the complexity of symptoms that come and go, understanding test results that fluctuate, and finding ways to embrace life’s fullness despite the unpredictability of this condition.

Yet within these shared challenges lies our collective strength. We are more than individuals affected by a rare kidney disease—we are adventurers, dreamers, and champions of our own stories.