A Bridge to Kidney Health
We’re connecting people living with rare kidney disease and the community and organizations that support them.
Living with rare kidney disease doesn’t define our horizons.
We are believers. And creators. And champions of our own stories.
And a community that sees possibilities, everywhere.
Whether you're searching for information, ready to share your experience, or looking to connect with the community,
you’re in the right place.
Take Charge of Your Kidney Health
Connecting people with one-on-one educators, valuable resources, and ways to find community support.
Stories of Strength & Support
Find strength in shared experiences—explore heartfelt stories from patients and caregivers navigating rare kidney diseases. Your journey isn’t one you have to walk alone.
Keyaira S.I’ve always known that my voice would impact others, but I never knew this would…
Rachel M.You are so tough and smart. Your childhood medical challenges will help you later…
María L.In this life you have to be strong, yes, oh yes! You are going to have to…
Stacey B.Younger self, your diagnosis does not define you. Your lab results do not define you…
Every shared experience of a rare kidney disease creates a ripple of inspiration.
Your story can spread inspiration and understanding through the community. How do you live beyond the limits?
Learn about RKD & Me
RKD & Me puts rare kidney disease front and center with the aim of creating more awareness and understanding of the unique experiences of people living with RKD.