RKD & Me Community Events
RKD & Me community advocacy work is grounded in the belief that no one living with a rare kidney disease should have to navigate their journey alone.
Where is the RKD & Me team headed?
Our community advocates and RKD educators partner with trusted local and national organizations to connect people at risk or living with kidney disease with health resources. Check out where we're going, and make sure to Sign Up to Stay Connected so that we can inform you when we're in your area.
June 2026
Men Matter Kidney Education
Atlanta | John H. Harland Boys & Girls Club, 434 Peeples St. SW, Atlanta, GA 30310
NephCure Patient Summit
New Orleans | Hyatt Regency, 601 Loyola Avenue, New Orleans, LA 70113
Men Matter Kidney Education
Atlanta | John H. Harland Boys & Girls Club, 434 Peeples St. SW, Atlanta, GA 30310
NephCure Patient Summit
New Orleans | Hyatt Regency, 601 Loyola Avenue, New Orleans, LA 70113
NAACP National Convention
Chicago | McCormick Place West, 2317 S Indiana Ave, Chicago, IL 60616
RKD & Me will have a table with community advocates and kidney educators at the convention.
SPARK
Atlanta | InterContinental Buckhead | 3315 Peachtree Rd NE, Atlanta, GA 30326
RKD & Me will have a table with community advocates and educators at SPARK.
For many people living with conditions like FSGS, IgAN, MCD, or other RKDs, the experience can feel isolating. People may know others with chronic kidney disease, but never meet someone with the same rare diagnosis. RKD & Me helps create opportunities for people, caregivers, healthcare professionals and local organizations to come together, helping people feel seen, supported and connected.
Across the country, our community advocacy team works to bring existing local resources into one place. These may include nephrologists, transplant centers, dialysis providers, community health workers, faith-based organizations and advocacy groups. By helping connect these resources, we’re working to make support easier to find and navigate.
At the heart of this work are the moments of human connection: people meeting others with the same rare kidney disease, learning about resources they did not know were available, and feeling more empowered to ask questions and seek support.
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