Share Your Story

Your voice matters. Sharing your experience can help bring awareness to rare kidney disease (RKD) and help others feel more connected as they navigate their own path.
There are many ways to tell your story, and each one can make a difference. You might share a moment, a reflection, or a “win”—big or small—that’s helped you move forward.
You’re welcome to share a video, letter, poem, journal entry, or something else entirely. However you choose to share, this is your space.

Questions to Help Reflect on Your RKD Experience

Feel free to use one or more of the questions below to get started. These prompts are here to guide you, but you can also reflect on another question that feels important to you.

Writing Prompts

• What’s a recent win, big or small, that I’ve experienced?
• What would I tell my younger self if I could talk to them now?
• When do I feel most supported, seen, or understood?
• What has my experience taught me about myself?
• What helps me feel grounded during difficult moments?
• Who or what has helped me most along the way, and why?
• If I could tell my story in one sentence today, what would it be?

Your Name (First/Last)

Your Story

I am a:

caregiver

patient

other

Affected by:

FSGS

IgAN

MCD

other

By checking this box and clicking “Submit” I am agreeing to share my contact and personal information and my story with Travere and the RKD & Me campaign.

All personal information – including sensitive personal information and health data such as diagnosis and health status – will only be processed by or on behalf of Travere to follow up with you about the potential inclusion of your story in the RKD & Me campaign. Travere will reach out to you for your authorization before publishing any portion of your story. Travere will retain personal information only for as long as is required to complete the purposes for which it was collected and to fulfill its legal, regulatory, or reporting obligations. Travere understands personal information is private and will not sell this personal information or disseminate it to third parties who are not providing services to Travere. For more information, review the Travere privacy policies. Prior to publication of your story, you may request the return and deletion of your story by contacting us. Story submission is only available for residents of the United States.