Living Beyond Limits: RKD & Me
Living with rare kidney disease (RKD) doesn’t define our horizons.
We are believers. And creators. And champions of our own stories.
And a community that sees possibilities, everywhere.
Every shared experience of a rare kidney disease creates a ripple of inspiration.
Your “Me &” story can inspire others by showing how you live beyond limits. Strengthen our community by reminding us we are more than our diagnosis.
Stories of Strength & Support
Find strength in shared experiences—explore heartfelt stories from patients and caregivers navigating rare kidney diseases. Your journey isn’t one you have to walk alone.
Keyaira S.I’ve always known that my voice would impact others, but I never knew this would…
Rachel M.You are so tough and smart. Your childhood medical challenges will help you later…
María L.In this life you have to be strong, yes, oh yes! You are going to have to…
Stacey B.Younger self, your diagnosis does not define you. Your lab results do not define you…
Support that Empowers
Discover the power of knowledge and community as you explore a wealth of resources from our advocacy partners. These tools aren’t just information—they’re springboards for living fully beyond your diagnosis.
Learn about RKD & Me
RKD & Me puts rare kidney disease front and center with the aim of creating more awareness and understanding of the unique experiences of people living with RKD.