Finding Strength Through Connection

Beyond medical appointments and daily management, living with rare kidney disease means having access to communities that understand, resources that empower, and advocates who amplify your voice. These dedicated organizations stand as beacons of support—transforming isolation into belonging and uncertainty into actionable knowledge.

The IgA Nephropathy Foundation illuminates paths forward for those affected by IgAN, weaving together research advancement, community support, and advocacy to create a future of greater possibility.

Founded by patients and families directly impacted by IgA Nephropathy, this foundation brings focused attention to the specific needs of the IgAN community. Their dedication to accelerating research while providing practical, day-to-day support empowers patients to navigate their diagnosis with confidence and connection.

NephCure stands as a powerful voice for those affected by rare kidney diseases, building bridges between patients, families, researchers, and healthcare providers to accelerate progress and enhance quality of life.

NephCure transforms the landscape for rare kidney disease patients through innovative research initiatives, comprehensive education, and vibrant community building. Their commitment to supporting both children and adults navigating FSGS, IgAN, and other protein-spilling kidney conditions creates pathways of hope and understanding for everyone touched by these diseases.

These organizations don’t just provide resources—they amplify your voice, validate your experience, and create meaningful pathways toward better understanding and care. By connecting with the community and sharing your experiences, you transform your individual journey into part of a powerful collective movement that’s reshaping the future for everyone affected by rare kidney disease.