Beyond medical appointments and daily management, rare disease can feel isolating, but it doesn’t have to. There are communities who understand, resources that can empower, and committed advocates and educators who can support you. Learn more about these support resources and organizations below.

Bridges to Kidney Health, a community initiative from Travere Therapeutics, provides education, resources and connections for individuals and families impacted by rare kidney disease. Our mission is to increase awareness, foster community, and empower people across the country to take charge of their kidney health.

Peer Connections & Community Collaboration

We partner with local nonprofit organizations, churches, schools, and civic leaders to bring the kidney community together, build belonging, and strengthen support networks. If you or your organization would like to connect with Bridges to Kidney Health, or if you’re interested in upcoming events and resources, please email the Patient Advocacy team. Together we can raise awareness, expand education, and create stronger bridges to kidney health.

Contact Travere Patient Advocacy

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The IgA Nephropathy Foundation illuminates paths forward for those affected by IgAN, weaving together research advancement, community support, and advocacy to create a future of greater possibility.

Founded by patients and families directly impacted by IgA nephropathy, this foundation brings focused attention to the specific needs of the IgAN community. Their dedication to accelerating research while providing practical, day-to-day support empowers patients to navigate their diagnosis with confidence and connection.

NephCure stands as a powerful voice for those affected by rare kidney diseases, building bridges between patients, families, researchers, and healthcare providers to accelerate progress and enhance quality of life.

NephCure transforms the landscape for rare kidney disease patients through innovative research initiatives, comprehensive education, and vibrant community building. Their commitment to supporting both children and adults navigating FSGS, IgAN, and other protein-spilling kidney conditions creates pathways of hope and understanding for everyone touched by these diseases.

These organizations don’t just provide resources—they amplify your voice, validate your experience, and create meaningful pathways toward better understanding and care. By connecting with the community and sharing your experiences, you transform your individual journey into part of a powerful collective movement that’s reshaping the future for everyone affected by rare kidney disease.