Dan K.

“Honest Truths and Hope”

Having navigated the emotional roller coaster that comes with a new diagnosis, Dan now focuses on supporting other people with FSGS.

Meet Dan, who has lived with FSGS for six years. Dan shares how swelling in his body progressed from what he thought was a "normal dad bod" to overnight facial changes that made him look "like a moon pie," and moments when fluid shifted so dramatically he couldn't bend his leg. Having navigated the emotional roller coaster that comes with a new diagnosis, Dan now focuses on supporting other people through the confusion and negativity they often encounter when searching for information online about the condition. His straightforward advice cuts through the overwhelm: "You feel like you're alone. You absolutely are not... You can manage. It's not an end-of-the-road situation." Dan's willingness to share the unvarnished truth about FSGS helps others feel less alone in their own experiences.

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