Sachet W.

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“Teaching Self-Advocacy & Growing Grace”

Sachet’s approach to caregiving redefines strength through vulnerability, embracing the unpredictable nature of FSGS by taking life one day at a time.

Meet Sachet, a private chef who shares her love of cooking and Harry Potter with her 16-year-old son Aiden, who lives with FSGS. As Aiden navigates the transition from pediatric to adult care, Sachet focuses on teaching him self-advocacy—encouraging him to speak up in doctor's appointments, ask his own questions, and take ownership of his health. Her approach to caregiving redefines strength through vulnerability, embracing the unpredictable nature of FSGS by taking life one day at a time. "When we have good days, we celebrate the good days. When we have bad days, we keep our emotions in check, we get rest and we focus on what we have to do to have a good day tomorrow," she shares. Sachet's message to fellow caregivers is powerful in its simplicity: give yourself grace, feel your feelings, and remember that dedicating your life to your loved one's wellbeing makes you "already superhuman."

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Cooking and creating together: how Sachet and her son Play It Forward

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