Carla B.

“A Journey from Silence to Support”

Carla emphasizes the critical importance of finding the right support group and learning to ask the right questions.

Meet Carla, a 55-year-old training manager and life coach whose son is "the love of my life, the light of my life." Carla brings clarity to understanding FSGS through her relatable coffee filter analogy—explaining how damaged kidneys work like a broken coffee filter that can't produce a good cup of coffee. Carla emphasizes the critical importance of finding the right support group and learning to ask the right questions. She advocates for people to find their voice in discussions with their doctors and to seek second opinions when needed. Her message to those newly diagnosed is both practical and hopeful: "Don't think of being diagnosed with FSGS as a death sentence. Think of it as, okay, you have to fight. This is a journey, but you're not alone." Carla looks forward to becoming a "Glamma" (glamorous grandmother) and continues advocating for early detection and proper treatment of this often-silent disease.

Back Next Story

Stories That Inspire

Sometimes the most powerful medicine isn’t found in prescriptions, but in the words of someone who has walked where you’re walking now.

Keyaira S.

MCD

I’ve always known that my voice would impact others, but I never knew this would…

Rachel M.

IgAN

You are so tough and smart. Your childhood medical challenges will help you later…

María L.

FSGS

IgAN

In this life you have to be strong, yes, oh yes! You are going to have to…

Stacey B.

MCD

Younger self, your diagnosis does not define you. Your lab results do not define you…