Chrystal H

Chrystal H.

“The Mama Bear Advocate”

"Never give up. You can have a second opinion."

Meet Chrystal, a devoted "volleyball mom" whose daughter Lauren lives with FSGS. Chrystal embodies fierce maternal advocacy, describing how she became Lauren's voice during those early doctor visits at age 10, speaking up when Lauren was too young to articulate her symptoms and needs. Now, as Lauren has grown into a strong advocate for herself, Chrystal watches proudly as her daughter tells doctors exactly how she's feeling and even posts online about the need for a better future. Chrystal's practical advice for other parents reflects her protective instincts: "Never give up. You can have a second opinion." She emphasizes the importance of asking questions, keeping a notepad during appointments, and not being afraid to advocate for what your child needs. For Chrystal and Lauren, faith and volleyball serve as their source of strength and their "getaway," representing normalcy amid the medical journey. Chrystal's unwavering commitment shines through in her promise: "Even on her wedding day, I will still be there, advocating, and never giving up."

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